The RE-BUILD (REgistry for Better Understanding of ILD) App is part of a research study being conducted in Australia at The University of Sydney in collaboration with Royal Prince Alfred Hospital, The Alfred Hospital, Austin Health, and The Prince Charles Hospital.

The aim of this study is to determine the feasibility of a smartphone app that enables participants diagnosed with interstitial lung disease to:

• Self-enter data (eg. medical investigation results, medications, symptoms and quality of life information)
• Access information resources and links to support resources
• Stay up-to-date with air quality in their current location
• Monitor and track their daily activity (steps and distance travelled) using Google Fit or Apple HealthKit

You can find all the details of how we use patient data in our privacy policy.

If the RE-BUILD App is demonstrated to be feasible and effective it will be made available across Australian and New Zealand ILD centres to simplify data collection for the Australasian Interstitial Lung Disease Registry (AILDR) and also generate important longitudinal data about patient-reported outcome measures (PROMs) that can be analysed in multi-centre collaborative research.

Importantly, the multifunctionality of the app may have other benefits such as increased patient motivation, knowledge and social connectedness.

Additionally, a smartphone app is an easily accessible tool that may improve the ease of data collection for patients living rurally or remotely who are not close to ILD centres – important in a large country such as Australia.